I'll take what little progress we get

Last night at bedtime, R. had several non-epileptic seizures... really big non-epileptic seizures. The type that a couple of years ago would have meant that we would all have been up all night at minimum and heading to the ER due to the ensuring psychosis following at worst. Historically, once she has had a seizure like these, her anxiety/fear/PTSD/trauma has all been kicked into such high gear that she cannot ratchet back down to any sort of calm. Last night was a little different. After each seizure she was able, with some fairly intense parental coaching, to do manage to reach a state of relative calmness. This is pretty unheard of before this. Now, it didn't last and we had to repeat the cycle several times, but it was a significant improvement. 

She did sleep for the first part of the night. J. was up with her about 3:30 or so, but she went back to sleep for a bit until 4:45 when I got up with her. This did not go so well and J. had me tap out and he took over, sitting downstairs with her on the coach, dozing as he could, until it was a reasonable time to get up. Why, yes, he is a fantastic husband and father. 

The other unusual thing about this whole thing was that in the morning, R. was appearing totally normal and functioning. This is also unheard of because usually we will have three days of this type of thing. She is tired now and so behavior is a little more challenging. I have no idea what to expect from tonight, though I really hope it involves sleeping without waking up. 

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